Knowledge Network

Provided by Dave Mainwaring's Knowledge-Network


Assisted Living and Senior Care Providers - OurParents: OurParents is a free and unbiased service focused on helping families with aging parents find the best senior care solution that meets their loved one's unique needs, be it an in-home caregiver, an assisted living facility, or a nursing home.

Call (866) 873-0030 for Immediate Assistance
Get Started with the Care Options Advisor
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Read More About Your Senior Care Options
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Kathleen Allen, Eldercare Consultant/Geriatric Care Manager

Kathleen Allen, LCSW, C-ASWCM | BrightFocus Foundation: Kathleen Allen, LCSW, C-ASWCM
Eldercare Consultant/Geriatric Care Manager
Kathleen Allen

Kathleen Allen has been working with older adults and their families for over 20 years. With an undergraduate degree in Business Administration from San Jose State University, Allen first worked in the defense industry for over a decade. Since receiving her MSW from Virginia Commonwealth University in 1994, she has worked with adult medicine patients at Georgetown University Hospital, INOVA Health System and with DaVita Healthcare Partners. Since 2000, Allen has been a practicing geriatric care manager in Alexandria, VA. She is an active member of the National Chapter and the Mid-Atlantic Chapter of Geriatric Care Managers.
Contact Information

Kathleen S. Allen, LCSW, C-ASWCM
Eldercare Consultant/Geriatric Care Manager
Senior Care Management Services, LLC

DEEP | Dementia Engagement & Empowerment Project

 What is DEEP?
The Dementia Engagement & Empowerment Project (DEEP) brings together groups of people with dementia from across the UK.
DEEP guides aim to support the involvement of people with dementia. Some were created for DEEP groups or individuals with dementia, others are for organisations wanting to work well with people who have dementia.

Some of these guides were co-produced with people with dementia, others were created independently by groups of people with dementia. This list of DEEP guides will be regularly updated throughout the project; contributions and suggestions for new guides are welcome. Please contact DEEP for more information.

Alzheimer's and Dementia: Global Resources | Communications at Alzheimer's Association, California Southland Chapter

Alzheimer's and Dementia: Global Resources: Worldwide, at least 44 million people are living with dementia. To serve this global population, as well as their families and caregivers, the Alzheimer's Association has translated its most popular and unique online resources and tools.

Jean Dickinson
Vice President of Marketing & Communications at Alzheimer's Association, California Southland Chapter
It's time to celebrate. Our group is now 20,000 members strong. This includes many members from around the world. It's also indicative of the growing interest in Alzheimer's disease and related dementias and the increasing number of people affected each day.

The Alzheimer's Association has "gone global," too. Please take a moment to visit our new Web portal at It has information in many languages along with in-country resources. We encourage you to link to us!

Alzheimer's & Dementia: Global Resources
    Country-specific Alzheimer's statistics, research plans and local support services.
    Educational content covering risk factors, symptoms, diagnosis and treatment.
    An overview of the Alzheimer's Association role in funding critical dementia research.
    An interactive brain tour.
    A call to action for the global community to join the cause.

Content can be accessed by country or language.
Select a Country:

    United Kingdom
    United States

Select a Language

    Portuguese (Brazilian)
    Spanish (European)
    Spanish (Mexican)
    Spanish (Rioplatense)

Everything Alzheimer's and Dementia

Alzheimer's Clips Everything Alzheimer's and Dementia. This site uses the clip format. -

A variety of talented writers offer everything you need to know about the challenge of caregiving, your loved one’s condition, and self-care.

Thanks to the tireless efforts of everyone at the Alzheimer’s Reading Room, you have a go-to place for advice, education, and an occasional laugh.

Stop by and start feeling empowered to handle life as a caregiver. - See more at:

A variety of talented writers offer everything you need to know about the challenge of caregiving, your loved one’s condition, and self-care.

Thanks to the tireless efforts of everyone at the Alzheimer’s Reading Room, you have a go-to place for advice, education, and an occasional laugh.

Stop by and start feeling empowered to handle life as a caregiver. - See more at:
A variety of talented writers offer everything you need to know about the challenge of caregiving, your loved one’s condition, and self-care.

Thanks to the tireless efforts of everyone at the Alzheimer’s Reading Room, you have a go-to place for advice, education, and an occasional laugh.

Stop by and start feeling empowered to handle life as a caregiver. - See more at:

About Us | Alzheimer’s Australia

About Us | Alzheimer’s Australia:

Alzheimer's Australia is the peak body providing support and advocacy for the 321,600 Australians living with dementia.

parts of the Older Americans Act

Untitled Page: To read more about Title II, Title VII, and other parts of the Older Americans Act, please visit: .

Memory Disorder Clinics » Alzheimer's Compendium

Memory Disorder Clinics » Alzheimer's Compendium

Memory Disorder Clinics

It can be difficult to find a team of doctors who are qualified to diagnose the different disorders that can caused dementia, especially for the early-onset patient.








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So You are going to provide In-Home Alzheimer's Care

Alzheimer's Disease and Dementia Resources Planning Guide for Dementia Care at Home

Introduction (P-23193) (PDF, 64 KB)

Stages of Alzheimer's Disease (PDF, 45 KB)

ADLs and IADLs (PDF, 52 KB)

Caregiver Support (PDF, 55 KB)

Medical Care (PDF, 56 KB)

Psychosocial Needs (PDF, 55 KB)

Nutrition (PDF, 46 KB)

Advance Directives (PDF, 46 KB)

Environment (PDF, 143 KB)

Environmental Adaptations (PDF, 29 KB)

Bibliography (PDF, 14 KB)
Welcome to ADRC Technical Assistance Web Site! : HomePage

The U.S. Administration on Aging sponsors this Exchange to make information and resources available to states and community organizations. AoA is committed to supporting states' efforts to develop and sustain a person-centered, self-directed national long term supports and services system. This system should effectively assist consumers with identifying and accessing a range of home and community based resources that maintain individual independence. This website provides a forum to allow a diverse community of stakeholders involved in making changes to their long term services system to exchange ideas, knowledge, and best practices.

State and/or Area Agency on Aging (AAA)

Find AAA's and SUAs
SUA / AAA Finder Start Over?

To locate a State and/or Area Agency on Aging (AAA) start by clicking the state on the map below or select the state from the drop down list. After the State Agency on Aging information is displayed you will be prompted to search for the local AAA. A few states (AK, DE, NV, ND, NH, RI, SD and WY) and the District of Columbia do not have AAAs so contact the State Agency on Aging to locate local resources. To find resources in the U.S. Territories, please use the drop down list and select the location.

Person-Directed Dementia Care

Person-Directed Dementia Care Behavior Solution Study

Person-Directed Dementia Care Assessment Tool (P-20084) (PDF, 303 KB)

Webcast 1: Introduction to Person-Directed Dementia Care

Additional Material: Powerpoint

Webcast 2: Developing Person-Directed Dementia Care Plans

Additional Material: Powerpoint

Applying Person-Directed Care Principles to the Care Planning Process for People with Dementia (PDF, 84 KB)

BayPath | Area Agency on Aging | Title III Programs | Older Americans Act

BayPath Area Agency on Aging
Title III Programs for FY 2011

Title III-B Elder Support Services
Title III-D Elder Health Promotion Services
Title III-E Support Services for Caregivers
Area Plan 2010-2013

Title III grants are awarded through the Area Agency on Aging (AAA) at BayPath to non-profit organizations serving elders throughout our MetroWest coverage area. Grant applications are submitted and reviewed by an Allocations Committee. Recommendations are then made to the AAA Advisory Council, and presented to the BayPath Board of Directors, who vote to approve the grant allocations.

These grants are supported with federal funds authorized under the Older Americans Act, and are targeted to meet the highest priority needs of persons 60 years of age and older. Title III funds are also utilized to support additional programs at BayPath, including Nutrition, Caregiver, Ombudsman, and Information and Referral.

Eligability for any of these programs is not means-tested, and the services provided (with the exception of Caregiver services) are available to any elder who resides in our service area.

If you, or any elder, are in need of these services, please contact that agency directly.

Solcial Security Compassionate Allowances, Alzheime's disease and related dementias

Compassionate Allowances Website Home Page

Compassionate Allowances
Social Security has an obligation to provide benefits quickly to applicants whose medical conditions are so serious that their conditions obviously meet disability standards.

Compassionate allowances are a way of quickly identifying diseases and other medical conditions that invariably qualify under the Listing of Impairments based on minimal objective medical information. Compassionate allowances allow Social Security to quickly target the most obviously disabled individuals for allowances based on objective medical information that we can obtain quickly.

Commissioner Astrue has held seven Compassionate Allowances public outreach hearings. The hearings were on rare diseases, cancers, traumatic brain injury (TBI) and stroke, early-onset Alzheimer's disease and related dementias, schizophrenia, and cardiovascular disease.

The initial list of Compassionate Allowances conditions was developed as a result of information received at public outreach hearings, public comment on an Advance Notice of Proposed Rulemaking, comments received from the Social Security and Disability Determination Service communities, and the counsel of medical and scientific experts. Also, we considered which conditions are most likely to meet our current definition of disability.
SSDI_checklist.pdf (application/pdf Object)

The Association for Frontotemporal Degeneration

Association for Frontotemporal Degeneration: Opening the gateway to help and a cure

The Association for Frontotemporal Degeneration is the place to turn for accurate information, compassion and hope when lives are touched by frontotemporal degeneration. FTD, also called frontotemporal dementia or frontotemporal lobar degeneration (FTLD), is a disease process that causes a group of brain disorders characterized by changes in behavior and personality, language and/or motor skills, and a deterioration in a person’s ability to function funded by Cornell Medical College,

This Caring Home was funded by grants from several foundations to Weill Cornell Medical College, a top ranked clinical and medical research center located in New York City. Rosemary Bakker, MS, ASID is on academic staff at Weill Cornell Medical College and is the Director of

All materials on ThisCaringHome’s website have been reviewed by select members of the Advisory Board, composed of a wide variety of professionals, including nurses, dementia specialists, physical and occupational therapists, safety experts, social workers, and recreational therapists.

Selected major sources for research|

One of my forum buds suggested these for reliable information:

Major research/teaching hospitals (e.g., Mayo)

Major universities, especially those with AD research centers (e.g., UCSF, Johns Hopkins)

Companies that publish manuals and textbooks for physicians (the Merck Manual Medical Library springs to mind, they have excellent resources)

Major non-profit associations (e.g., the Alz Assoc, Fisher Center for Alzheimer's, AFTD, LBDA, Family Caregiver Alliance)

Professional associations (e.g., AMA and -- especially for info on AD research -- the Alzheimer Research Forum)

Magazines and journals published by professional associations (e.g., Psychiatric Times)

Government agencies (e.g., any of the National Institutes of Health, FDA, CDC)

Organizations that offer CME (continuing medical education), e.g.,

Sites that have independent medical review boards to vet their articles

Science Daily is pretty good, but always read the original research papers, too.

Federal, State, Local Government Sites

The U.S. Administration on Aging (AoA)Developing comprehensive, coordinated and cost-effective system of home and community-based services that helps elderly individuals maintain their health and independence in their homes and communities.

NIH Senior Health websitewebsite for older adults from the National Institutes of Health.

Mass Gov Official Website of the Office of Health and Human Services

Medicaid General Information, CMCS Bulletins, Community Services and Long Term Supports, Medicaid Reimbursement, Preadmission Screening and Resident Review (PASRR), Programs of All-Inclusive Care for the Elderly (PACE), State Medicaid Director Letters, Telemedicine

National Clearinghouse for Long Term Care the National Clearinghouse for Long-Term Care Information. This web site was developed by the U.S. Department of Health and Human Services to provide information and resources to help you and your family plan for future long-term care (LTC) needs.

Caregiver Guide, booklet, Home Safety for People with Alzheimer's Disease

Nassau County Department of Senior Citizen Affairs

Dementia driversafety

Organizations set #1

The Family Caregivers Association National NFCA reaches across the boundaries of diagnoses, relationships and life stages to help transform family caregivers' lives by removing barriers to health and well being.

Source for Clothing Name Labels

Alzheimer's Made Worse By Uncorrected Hearing Loss: The Inside Story

Newton at Home – Website a community support system that would enable them and others to remain in their Newton homes as they grow older.

AAN Issues Guideline on When People with Alzheimer's Disease Should Stop Driving he American Academy of Neurology has issued a new guideline to help determine when people with Alzheimer’s disease or another type of dementia should stop driving. The guideline is published in the April 12, 2010, online issue of Neurology®, the medical journal of the American Academy of Neurology

Consumer Resource Directory - Community Services & Resources

From VA Week of February 14, 2011

The Department of Veterans Affairs (VA) has opened a new, toll-free telephone line for the caregivers of veterans of all eras. The National Caregiver Support Line at 1-855-260-3274 will assist caregivers, Veterans and others seeking caregiver information. The telephone line will be available Monday through Friday. 8 a.m. to 11 p.m., eastern time; and Saturday, 10:30 a.m. to 6 p.m., eastern time. Licensed VA social workers and health technicians will staff the support line. For more information on caring for veterans, visit the VA's Caregiver webpage

Organizations set # 2


Senior Health Advisor 2003.1: Resource List: Alzheimer 's Disease

VNA Care Network & Hospice's Referral Center services and insurance coverage

senior care services org Alzheimer's Disease

Triangle J Area Agency on Aging

helpline center .org SENIOR SOURCE

Organizations set # 3

Geriatric Care Managers of New England a regional chapter of the National Association of Professional Geriatric Care Managers.

Move-in Information for classic assisted living facility, Heritage ALF

Pace Program -Summit ElderCare A Program of All-Inclusive Care for the Elderly (PACE) sponsored by Fallon Community Health Plan

Net of Care org web site

MA Nursing Home Quality of Care the sole statewide consumer group working for improvements in the quality of care for MA long-term care residents. We are a committed group of families, friends, and advocates

Metrowest Alzheimers Partnerships The Alzheimer's Association works with local service providers and family members to support the creation of local Partnerships. Each Partnership is a self-sufficient task-oriented alliance of health care and human service professionals, family members and other concerned individuals working to increase and improve local services through: education, coordination, development of new services, and advocacy.

Alzheimer's Disease International
is the umbrella organization of Alzheimer associations around the world, which offer support and information to people with dementia and their caregivers.

Organizations set # 4

safety products to deal with wandering and other ,

American Heart Association Forums: Main
American Heart Association Forums

Welcome to our online community. Please choose from one of the forums below or log-in to your user account to start using this service.

About MidBio
Midwest Bioethics Center was a community-based ethics center, founded in 1984 by a physician, an attorney, and a philosopher. Dedicated to its mission to integrate ethical considerations into healthcare decision-making throughout communities, the Center offered workshops and educational programs for professionals and lay people alike, assisted healthcare providers throughout the country in grappling with ethical issues in clinical work, and assisted administrators in integrating ethics into the organizational structure. MBC was a membership organization for both consumers and professionals.

MBC facilitated four different ethics consortia which met to study ethical issues and prepare policy guidelines.

Medical Centers, Hospitals, Schools and University Resources

University of Maryland School of Medicine Videos Elder Care DVDs

AlzOnline : Alzheimer's Caregiver Support Online AlzOnline believes that throughout your caregiving journey you will have questions related to the many aspects of caring for a loved one. We want to help meet these challenges by providing quality caregiver education, information, and support.

Hearing aids: How to choose the right one | Mayo Clinic

Care Levels of nursing home care the University of Rochester Medical Center forms the centerpiece of the University's health research, teaching, patient care, and community outreach missions.

Alzheimer Disease patient's pain behaviors An online presentation about pain and dementia

Seniors -- Alzheimer 's Disease from Strong Rochester